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Your UCP: National September 03, 2003
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Cerebellar atrophy in an adult with spastic CP
Colleen Fox (celtfox@earthlink.net)
I am now 50 years old, and was diagnosed with cerebellar atrophy. At least one part of my brain has stopped refreshing the brain matter, so where I should have brain matter I have nothing. Cerebellar atrophy normally indicates that some sort of hereditary condition has surfaced. I have had a gammit of blood tests and DNA tests and no chromosone or gene mutations have been found. The neurologist who specialize in neurodegenerative conditions are now telling me that this is due to my Cerebral Palsy and aging. I would like to know if any adults with spastic CP have been given this diagnosis. I have not accepted this diagnosis because CP is not a degenerative disease. The atrophy is causing me to fall straight backwards with no warning. It is different from falling due to the CP, because in those cases I have bumped into something and lost my balance. The other symptom that I have that I have not seen in any research articles is having to self-cath because my bladder is not emptying. The incontinence could be from the CP or the atrophy.
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Laurie Lazicki (laurielazicki@earthlink.net)
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