home research news speak out calendar ideas guest book search
Go to UCP Homepage
 
Home News Research Congress Speak Out Calendar Feedback Search
Education Employment Health & Wellness
Housing Parenting & Families Products & Services
Sports & Leisure Transportation Travel
Your UCP: National September 03, 2003
Health & Wellness sponsored by:

Discussion Group
Options: View this Topic | View all Topics
Current message:
07.12.03
15:42
Cerebellar atrophy in an adult with spastic CP
Colleen Fox (celtfox@earthlink.net)
I am now 50 years old, and was diagnosed with cerebellar atrophy. At least one part of my brain has stopped refreshing the brain matter, so where I should have brain matter I have nothing. Cerebellar atrophy normally indicates that some sort of hereditary condition has surfaced. I have had a gammit of blood tests and DNA tests and no chromosone or gene mutations have been found. The neurologist who specialize in neurodegenerative conditions are now telling me that this is due to my Cerebral Palsy and aging. I would like to know if any adults with spastic CP have been given this diagnosis. I have not accepted this diagnosis because CP is not a degenerative disease. The atrophy is causing me to fall straight backwards with no warning. It is different from falling due to the CP, because in those cases I have bumped into something and lost my balance. The other symptom that I have that I have not seen in any research articles is having to self-cath because my bladder is not emptying. The incontinence could be from the CP or the atrophy.
Respond to this message
Responses to this Message:
08.01.03
15:53
Don't accept
Laurie Lazicki (laurielazicki@earthlink.net)
Health & Wellness
General Information
CP Medical Research
Disability Research
Healthcare
Health Insurance Info
Sexuality
Therapy Options
Women with Disabilities
Advocacy
UCP Services
Resources
Discussion Group
LEARN ABOUT UCP:
About UCP
Research Foundation & Fact Sheets
Donate!
Corporate Sponsors
Public Policy
Media & Public Awareness
Grants & Contracts
Bellows Fund
Web Site Accessibility
En español
© 2003, UCP National (aka United Cerebral Palsy)
1660 L Street, NW, Suite 700, Washington, DC 20036
Phone: 800-872-5827/202-776-0406 TTY: 202-973-7197 Fax: 202-776-0414
E-Mail: webmaster@ucp.org
Affiliate Center Entrance
[password required]
Privacy Policy & Terms of Usage