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Your UCP: National September 03, 2003
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Parent message:
07.17.03
22:07
trouble sleeping
Current message:
07.23.03
22:15
thanks
Hi there, She has mixed tone- the docs haven't quite agreed on how to categorize it yet (she was just 2). She goes through periods where her tone increases (mostly in her legs), but she's also largely low tone -especially in the trunk. So, we suspect that sometimes the increased tone is related to teething- and we often treat it with Motrin, which seems to help her sleep (any kind of pain can apparently increase tone). So, we're still trying to put together the whole picture and see if more tone emerges as she ages/grows. Thanks, by the way, I saw you mention the yahoo support group to the "exhausted mom." I would like to check it out, too. Our daughter was diagnosed about a year ago, but I still have my days where I'm struggling to accept it all- especially since we don't have any clear picture of her future abilities. So, thanks for that tip. Take care! -Renee
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Responses to this Message:
07.23.03
23:02
trouble sleeping
Leah Brooks (ditto@cfl.rr.com)
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