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Your UCP: National September 03, 2003
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Parent message:
03.31.03
21:53
SDR @ St. Louis Children's Hospital
Anne Chaperon (chaperon1@yahoo.com)
Current message:
04.01.03
21:14
SDR at St. Louis
Leah Brooks (ditto@cfl.rr.com)
Hi, Christine covered it all! Hannah, my DD, went from walking 5-8 independent, but very shaking steps, to ambulating without assistance (in DAFOs) six months later! She no longer scissors her legs, her toes and feet are flexible. We are working very hard to strengthen the muscles that atrophy with CP, and we are making a lot of progress. Dr. Park, the neurosurgeon who does this surgery, predicts that we will never need orthopedic surgery to lengthen anything. Definitely check into this! Last time we were in St. Louis, we met families from Brazil, Australia, and Peru who moved heaven and earth to get this surgery for their child. If you have questions, you will find a lot of information at http://messageboards.ivillage.com/iv-ppcerebplsy It's a message board for parents of CP kids. There are some who have gone through it already, and some who are having the surgery in the next few months. Also, look at the posts down below. There's a ton of info there.
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